introductions please :)

Welcome to our new blog :) I am the mommy of a very special little boy. He was born with an occipital encephalopcele. I will go into complete details about his life from the beginning :) We recently went to a routine visit with our neurologist. He is the head of Pediatric Neurology for Primary Children's Medical Center and the University of Utah. As we sat there asking questions and receiving the same answer, I felt my temper rise. The answer was "I don't know." In my mind, all I can think is this is your JOB! How in the H do you not know!!?? What good are you!?! I was so frustrated and broken-hearted by the end of the appointment. We came home. We learned some new things about his diagnosis which I will go into detail later on. I talked with my husband to some length about it all. Our son is ahead of most, if not all, children his age with his condition. Dr. F (neurologist) kept repeating that. I thought about it a lot through out the night and today. Ya know, no one knows what's going on because my son is defying it all. He's re-writing the text books. I decided that it's my job as his mommy to do the writing while he can't. Hence the new blog :) I'm going to do a daily chronicle of the life of Nevets :) So stay tuned folks :) Lets rock and roll :)